904. Outcomes Research: Hemoglobinopathies: Poster I

Real world outcomes analysing the use of glucocorticoids in patients with acute chest syndrome A propensity score matched analysis from global federated health research network

We know what we need Exploring the communicative and structural gaps in support for caregivers of adults with sickle cell disease CASPS

Household material hardship as a barrier to accessing sickle cell disease curative therapy

Clinical impact of individualized care plans on management of acute pain in the emergency department for children and adults with sickle cell disease

Trust and relationships between people with sickle cell disease and healthcare professionals Regional comparisons from the listen survey

Health status of Ugandan children born with sickle cell anemia and congenital HIV identified through newborn screening

Iron overload is prevalent likely underdiagnosed and undertreated in sickle cell disease A real world report from the ASH research collaborative

Implementing patient centered PROMs in sickle cell disease care A european consensus approach

Real world effectiveness of l glutamine in Texas Medicaid patients with sickle cell disease

Increased risk of venous thromboembolism and hypertensive disorders during pregnancy in sickle cell disease patients A meta analysis focused on actionable outcomes

Support isn t always supportive Relational and cultural misalignment in black sickle cell disease adult caregiving norms

Risk of death and comorbidities in β thalassemia carriers identified by consecutive genotyping A prospective cohort study of 467 242 general population individuals

Chronic opioid medication use is associated with healthcare utilization and fatigue in adults with sickle cell disease